Monday, August 4, 2014

Beyond the Pale -- Reading books with random dwarfism passages

picture of young boy lying in grass reading a book
I wish I was a voracious reader.  I'm jealous of people who say they read whenever they have a chance.  I'm jealous of the people who say they spent their childhoods with their nose between the pages of a book. I'm jealous because books have had a deep impact on my life.  I still remember reading Watership Down on the couch at my aunt and uncle's house when I was a child.  I remember reading Absalom, Absalom in my parent's living room during winter break my sophomore year of college.  I remember crying on a flight back from Columbus, Ohio two years ago as I finished Salvage the Bones.  Some books resonate, and will be felt for years to come.  The problem is, I can only read 20 minutes at a time, at best.  I read on the train coming from or going to work or I read in bed.  It's not that my days are too busy to find other times to read.  But plenty of times I could have read, I've flipped on the television instead.  And when I do read, I grow tired less than half an hour after I pick up the book.

picture of book cover for Andrew's Brain by E.L. Doctorow
Though I'm not the strong reader I wish I was, I enjoy reading about books.  One of my favorite things to do is to read the "Briefly Noted" section of The New Yorker, four book reviews that are each less than 200 words.   Every week, I look at the reviews and make a note of any book that I'd like to read.  Every few months, I'll order a group of books online.  Last week, I received three in the mail.  The first one I started to read is Andrew's Brain, by E.L. Doctorow.  I've never read anything by Doctorow, but he is well-known for Billy Bathgate, Ragtime and others.  Andrew's Brain follows this professor of brain science.  The narrative centers around the professor sharing his life story with a second person. It's unclear who exactly the professor is talking to, but it could be a doctor of some sort.  Last week, on Thursday or Friday morning, I pulled the book from my bag to read a few pages during the train ride to work.  I was on page 67.  At that point in the book, the main character is relaying a story about the time he met the parents of his girlfriend. The author writes, "They were young looking given they were retirees.  It's hard to tell with Diminutives.  Diminutives?  You don't want to patronize them. "Midgets" is beyond the pale.

From out of nowhere, two short statured characters were introduced.  Though using the word diminutive was very much in character for the narrator, I struggled a little bit with the language and sat staring at the page until it was time for me to leave the train.  Later that day, I told my wife about it.  When I said diminutive out loud, we both laughed about it because the word is rather silly, and when I said the word aloud, it became more clear that the word said more about the narrator than it did about the dwarfs.  Laughing allowed me not to take the language so seriously and I was able to pick up the book again either that night or the next night. 

I tried to appreciate the context of the narrator. Nevertheless, I struggled through the section that included the diminutive retirees.  Though the narrator recognizes that "'midgets' is beyond the pale," the word is used fairly often through the section.  Also, at no point during the section does the narrator frame the two short-statured characters within the realm of everyday life, within the realm of the typical.  The narrator is unable to interpret the characters except through a frame of reference that is defined by dwarfism.  Because the narrator can not accept dwarfism as part of the everyday environment in which he lives, everything about the parents is other worldly and they are never portrayed as regular people who happen to be dwarfs.  Instead, they are portrayed as people who are very different who live in a very different world. 

Thinking about the section, I try to understand that the story is written from the narrator's point of view.  And the narrator is someone whose own reality is very different and skewed from the reality in which I wanted him to place the two dwarf characters.  Though I tell myself this, the fact is the picture the author created of the dwarfs could just as easily reflect the ignorance that still exists about dwarfism in broader society.  The fact is, the picture in the book could easily reflect the author's own ignorance.  After all, almost every time one reads about or sees a dwarf in popular culture, the dwarfism is often sensationalized and the dwarfism often defines the individual. 

Whatever the case may be, I will keep reading.  I will finish the book.  I will keep buying books and will do what I can to some day become a voracious reader.  I just hope that in future books, when I come across random passages about dwarfs, the picture is more flattering. 


  1. I am one of those individual who spent an extraordinary amount of time (previous to the last 2-3 yrs) reading into the wee hours of the night and have run into characters of short stature throughout the years. I keep promising to make a list as I know there are some not included in the LPA site's list .... Retirement project.
    We are uncommon and some folks are taken back when they meet us. I'm not surprised when adults are surprised, it is unexpected and you can see them trying to wrap their head around the situation. And to have the g/f be of common height would certainly send a lot of folks in real life into a mental tailspin. "How? But she isn't. How can they be? Maybe she's adopted. But she's so....and they're not so....". You still see the situation played out in situation comedies. I think there is less head-wrapping when meeting a family composed of all short statured individuals, but when they encounter the 'mixed' situation it can be baffling for the dwarfism neophyte. 
    Even in 2014, when 'we' celebrate approximately 12 yrs of TV (over) exposure, there are many people who have never seen any of the shows or met one of us. In that context I wouldn't have been phased by the use of either diminutive or midget. In all honesty, most days that I detest the label 'little people' much more. I refuse to refer to myself with that label. In most situations I will correct someone who uses the term, especially if it is someone I expect to encounter again. To me the term is just as demeaning & reminiscent of circuses and sideshows as 'midget'. In fact, previous to finding LPA & the mIRC LP-community chat room in 2000 I barely blinked at the use of the word and had even used it when seeking dwarfism related medical intervention in 1996-97. Post being enlightened, I was reading one book in a series & caught myself getting indignant when the author referred to a new character of short stature as a midget, to the point where I came this close ====> <==== to writing to her to explain how a loyal fan of the series was upset. All of the spinning in my head was ruining the series for me! And at that time I loved the series. Luckily I stepped back & took into consideration that the 'midget' reference fit the vernacular for this group of characters and I could then deal with it. She actually brought him back for a few books and he ended up being more badass than I anticipated. Well, until he was killed off! The series was extremely light, summer, not much thinking required, reading and eventually I overdid it (as if I had eaten an entire pint of B&J Chunky Monkey in one sitting). She's kept writing and maybe one day I'll go back for more Chunky Monkey. 
    Doctorow (not that I've read much) can be quirky, as can be some of his characters. It is a portrayal honesty of the times and hopefully one day we will be more common and things will be different. I need to retire soon as my list of books that have peaked my interest is out of control. 

  2. I apologize for hijacking your post. Late night + a sugar/caffeine rush = way too many words I need an editor!